Embedding diversity and inclusion within public engagement in stroke research: a case study

Abstract

Introduction: Public engagement is integral to the research process, yet seeking diverse views and being inclusive is often seen as a challenge. Whilst public engagement is the bedrock of our research, the Stroke Research Team has relied on a small number of individuals, limiting diversity. This project, therefore, aims to build a public engagement group that is diverse and inclusive to inform our research and ensure relevance to all stakeholders.

Method: Informed by the National Coordinating Centre for Public Engagement (NCCPE) guidance, we sought opportunities to engage with our local community. These approaches included: 1) scoping local community resources; 2) developing governance processes; 3) building networks and establishing relationships with local stakeholders; 4) utilising advice from these discussions to create a strategic plan to enhance public engagement within the Stroke Research Team.

Results or details of the case: This work has resulted in improved links with under-served groups, a ‘Stroke Matters’ community event, the provision of ‘health-sharing’ sessions with community groups, involvement in a community-driven, co-creation project to address health inequalities.

Conclusion: The journey led us down many unexpected routes as we grasped opportunities whenever they arose. Our key learning was 1) spend more time listening than talking to those with whom you want to engage; 2) think about what you can offer, rather than what can be gained from the engagement; 3) be prepared for long-term commitment, which may require investment of time and energy; 4) follow-up any on offer to engage, because you cannot know where this may lead.